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1.
Ther Umsch ; 80(7): 298-301, 2023 Sep.
Artigo em Alemão | MEDLINE | ID: mdl-37855558

RESUMO

INTRODUCTION: Modern societies are multicultural and diverse in many ways. Among numerous other facets, they are characterised by linguistic and cultural diversity. In health care, encounters, exchange and understanding between people of different cultural backgrounds are part of everyday life and require intercultural competence. The aim of this article is to shed more light on this ability as well as on important concepts related to interculturality.


Assuntos
Competência Cultural , Atenção à Saúde , Humanos , Diversidade Cultural
2.
HEC Forum ; 2022 Sep 07.
Artigo em Inglês | MEDLINE | ID: mdl-36069966

RESUMO

Leading paradigms of clinical ethics consultation closely follow a biomedical model of care. In this paper, we present a theoretical reflection on the underlying biomedical model of disease, how it shaped clinical practices and patterns of ethical deliberation within these practices, and the repercussions it has on clinical ethics consultations for patients with chronic illness. We contend that this model, despite its important contribution to capturing the ethical issues of day-to-day clinical ethics deliberation, might not be sufficient for patients presenting with chronic illnesses and navigating as "lay experts" of their medical condition(s) through the health care system. Not fully considering the sources of personal knowledge and expertise may lead to epistemic injustice within an ethical deliberation logic narrowly relying on a biomedical model of disease. In caring "for" and collaboratively "with" this patient population, we answer the threat of epistemic injustice with epistemic modesty and humility. We will propose ideas about how clinical ethics could contribute to an expansion of the biomedical model of care, so that important aspects of chronic illness experience would flow into clinical-ethical decision-making.

3.
Health Expect ; 20(5): 1133-1142, 2017 10.
Artigo em Inglês | MEDLINE | ID: mdl-28338280

RESUMO

INTRODUCTION: Involving patients in decision making is a legal requirement in many countries, associated with better rehabilitation outcomes, but not easily accomplished during initial inpatient rehabilitation after severe trauma. Providing medical treatment according to the principles of shared decision making is challenging as a point in case for persons with spinal cord injury (SCI). OBJECTIVES: The aim of this study was to retrospectively explore the patients' views on their participation in decision making during their first inpatient rehabilitation after onset of SCI, in order to optimize treatment concepts. METHODS: A total of 22 participants with SCI were interviewed in-depth using a semi-structured interview scheme between 6 months and 35 years post-onset. Interviews were transcribed verbatim and analysed with the Mayring method for qualitative content analysis. RESULTS: Participants experienced a substantially reduced ability to participate in decision making during the early phase after SCI. They perceived physical, psychological and environmental factors to have impacted upon this ability. Patients mentioned regaining their ability to make decisions was an important goal during their first rehabilitation. Receiving adequate information in an understandable and personalized way was a prerequisite to achieve this goal. Other important factors included medical and psychological condition, personal engagement, time and dialogue with peers. CONCLUSION: During the initial rehabilitation of patients with SCI, professionals need to deal with the discrepancy between the obligation to respect a patient's autonomy and their diminished ability for decision making.


Assuntos
Tomada de Decisões , Pacientes Internados/psicologia , Participação do Paciente , Traumatismos da Medula Espinal/reabilitação , Adolescente , Adulto , Idoso , Atitude do Pessoal de Saúde , Feminino , Nível de Saúde , Humanos , Masculino , Saúde Mental , Pessoa de Meia-Idade , Pesquisa Qualitativa , Centros de Reabilitação , Estudos Retrospectivos , Fatores de Tempo , Adulto Jovem
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